Data Policy and Standards Committee
The WG is focusing on immediate priorities for MOHCCN Gold Cohort approvals and data preparation for submission to digital platforms, in close collaboration with designated sites and MOHCCN/TFRI leadership.
The mandate of the WG is to:
- WG Responsibility: Provide recommendations on core aspects of data sharing, data access & use, and data privacy principles for the development of policies.
- WG Strategy: Socialization of draft policies among the WG members to identify areas of question/concern, followed by discussion of the feedback for integration and finalization of the policies.
Terms of reference
Activities of this working group are subject to the following terms of reference:
Output documents
This working group has generated the following policies and guidelines.
Network Voices
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How the Marathon of Hope Cancer Centres Network is supporting responsible data sharing to advance precision oncology
Adrian Thorogood, TFRI's Data Governance Manager, explains how the Network is addressing barriers to ensure data sharing is consistent with applicable ethical and legal norms and international best practices.
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