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Working Groups
Introducing the Marathon of Hope Cancer Centres Network Working Groups
The Marathon of Hope Cancer Centres Network (MOHCCN) is uniting patients, researchers, oncologists and administrators from leading cancer centres and hospitals across Canada to collaborate on projects that will accelerate precision medicine for the benefit of cancer patients.
These collaborations are fostered through the work of the MOHCCN Working Groups. These groups have been operating ever since funding for the Network was announced by the Federal Government in March 2019, when it was determined that the Network should operate according to agreed standards and guidelines recommended by experts from across the country.
Meet our Working Groups
Currently, the MOHCCN is supported by 11 Working Groups, who come together on a regular basis to draft the guidelines, standards, and policies that govern the Network.
While each of these working groups tackles a different area of cancer research and is made up of a wide array of expertise, these groups operate in unison, maximizing the potential for impact of the Network while helping to create the Team Canada of Cancer Research.
Biospecimens Working Group
Canadian Spectrum Working Group
Develop inclusion strategies for underserved and underrepresented populations. Network activities, including datasets, should reflect the full Canadian Spectrum. This includes developing standardized definitions of underserved and underrepresented populations as well as strategies for respectfully and meaningfully including and engaging with these populations.
Oversee the development, approval and implementation of socio-demographic data fields in a MOHCCN model, including the creation of Network guidelines for collecting these variables.
Provide support to other WGs, including recommendations for strategies to increase diversity and inclusion in WG membership and activities.
Clinical Data Model Guideline Subgroup
To create a comprehensive data curation guideline for the MOHCCN Clinical Data Model.
*Please note that this is a subgroup of the Clinical Data Standards Subcommittee.
Clinical Data Standards Sub-Committee
Data Access Committee
Data Policy and Standards Committee
Data Sharing Subgroup
Health Technology Assessment Working Group
Hematology Biospecimens Subgroup
Immune Profiling Subgroup
IP and Commercialization Working Group
Develop MOHCCN policies as it relates to the following:
- Definition of the various relevant categories of generated intellectual property under the consortium (“Foreground IP”)
- Ownership of each category Foreground IP
- Revenue sharing (as distinct from ownership) as it relates to:
- Foreground IP arising from Academic (non-commercial/no commercial funding) Secondary Studies using MOH/Member Resources
- Foreground IP arising from Commercially Funded (Sponsored Research) Secondary Studies using MOH/Member Resources
- Foreground IP arising from Commercial Entity Directed Studies using MOH/Member Resources
- Revenue sharing (as distinct from ownership) as it relates to each of the above – where the Secondary Study is MOH Funded.
- Developing a Framework for “Rules” as it relates to third-party Sponsored Research and/or third-party Funded Research as it relates to Access to the MOH Resources to ensure reasonable/fair access and terms.
Network Council
The roles of the Network Council are:
a. Decision-making and oversight of Network strategic plans and activities, in collaboration with TFRI Staff.
b. Endorsement of Network guidelines and policies developed by the working groups and prior reviewed by the Steering Committee.
c. Review the adequacy of the systems and controls put in place by the management.
d. Financial oversight
e. Stakeholder accountability and communication
f. Risk management
Patient Working Group
Return of Results Working Group
Scientific Questions Working Group
- Connect and represent scientific communities across the spectrum of the Network
- Provide overarching scientific questions and themes as a guide to Network activities
- Recommend priorities for funding and future cohort selection
Steering Committee
The roles of the Steering Committee are to:
a. Identify issues that require Network level policy development, in collaboration with TFRI Staff and Network Council.
b. Support the creation of pan-Canadian Working Groups (WGs) to prepare policies and processes for review.
c. Review the activities and processes involved in the development of the policies by WGs to ensure their readiness for endorsement by the Network Council. Any contentious issues raised during this review will be addressed by the WG or MOHCCN Staff prior to Council submission.
d. Monitor progress to deliver upon each Designated Centre’s goals, milestones and deliverables.
e. Provide guidance to management to solve problems, in particular scientific issues, and advice on the achievement of milestones and deliverables.
g. Promote Network-wide education and learning from scientific and clinical advances.